We know that many of you are waiting for the latest news about Alicia’s health and planned treatment. You ask in private messages what you can do for us and how to help.
And I admit that sometimes I feel lost and helpless in it myself. I have already informed about infections and the necessary treatment of inflammations before a surgery. We also wait for allergy tests for local anaesthesia. We had visits to other specialists, and although there were new research and new drugs, there were new problems that are difficult to write about.
In general, one doctor makes a referral to the other, because some new symptoms require explanation. I wrote to our consultant in London, he is on vacation now, but he replied that we should arrange a visit for another specialist in connection with new symptoms. It means waiting again, maybe more tests and waiting again.
In July and August, surgeries at the neurosurgical clinic in Barcelona are not carried out. So there are some free dates in September. It is difficult to book a specific date because it is not known when it will be possible to treat infections and when all doubts of specialists will be clarified.
Generally, opinions and recommendations of doctors are sometimes different and contradictory so we have to make difficult medical decisions. It is just as tiring as illness. All this situation exhausts us emotionally, irritates and certainly does not help.
We have to admit that it is not easy now, that’s why I did not write. Everything gets so complicated, but we can not give up. I hope you will understand how difficult it is to share these problems on an ongoing basis. Do we lack strength? We can not run out of strength to fight the disease, but sometimes we feel helpless in the face of new obstacles and the whole system.